Cystic Fibrosis Community Care is a sports club located in Melbourne, dedicated to supporting individuals and families affected by cystic fibrosis (CF). CF is a genetic condition that results in the abnormal build-up of thick and sticky mucus in the lungs, airways, and digestive system. As the most common and life-limiting genetic condition in Australia, CF requires intensive daily physiotherapy, medication, and frequent hospitalisations.
The club aims to provide comprehensive support to the CF community through various programmes and services. Their website is a valuable resource for individuals of all ages and their families, offering information and advice on managing CF. The club recognises that everyone's experience with CF is unique, which is why they provide tailored resources for children, young people, adults, and carers.
CF Community Care believes in the power of community and encourages individuals to fundraise and donate to support their cause. All funds raised contribute to delivering essential support services and improving the lives of people living with CF, their families, and carers. The club has made a significant impact on the CF community, providing 635 subsidised items of physiotherapy equipment, responding to over 5,500 requests for information, support, and advocacy, and assisting individuals with emergency financial assistance and education support.
In Australia, approximately 3,500 people are living with CF, and 1 in 25 individuals carry the recessive CF gene change. While there is currently no cure for CF, advancements in treatment and care have extended the life expectancy of individuals with the condition, enabling them to live well into adulthood.
The club also keeps the CF community updated with the latest news and developments in the field. Their website features articles on topics such as reproductive carrier testing and the impact of CF on mental health. They strive to raise awareness and promote understanding of cystic fibrosis every day, with World CF Day being an especially important opportunity to engage in advocacy and education.
Cystic Fibrosis Community Care organises events to bring the CF community together and facilitate fundraising efforts. One such event is “Great Strides,” where over 1000 people participate in a walkathon to create a supportive and enjoyable atmosphere while raising funds for CF. In future editions of the event, top jockey Harry Coffey will be among the participants, contributing to the success and excitement of the day.
To stay connected with the CF community, individuals can sign up for the CF Magazine, a newsletter that provides updates on activities and initiatives. For inquiries or support, the club can be reached via email or phone.
Cystic Fibrosis Community Care acknowledges the Indigenous people who are the Traditional Custodians of the land on which they operate, demonstrating their respect for Elders past, present, and emerging. The club prioritises infection control and adheres to privacy policies and terms and conditions to ensure the safety and well-being of their members.
In conclusion, Cystic Fibrosis Community Care in Melbourne is a sports club dedicated to providing support, education, advocacy, and research opportunities for individuals and families affected by cystic fibrosis. With their focus on community engagement and raising awareness, they strive to improve the lives of those living with CF and ensure they receive the necessary support to manage their condition effectively.